7/19/07 - Appointment with Dr. Wang (Kathi)
Mom told the doctor that she feels good. She has had some pain in her head but it doesn't last very long and it's not in the same place each time - doctor did not feel concerned. She also mentioned that her feet aren't bothering her. No other symptoms.
During his exam Dr. Wang noted her blood pressure was elevated 160/80 (one of the potential side effects on the medication) and recommended that she increase her high blood pressure medication. Dr. Lacey (general practitioner) wasn't in her office but Mom has called her to let her know of the change.
Dr. Wang did have a comment about the Nexavar - we were under the impression that she took the medication for 4 weeks and then was off for 2 weeks - Dr. Wang told us that she needs to be on it continuously. (This was confirmed with Mark Lynch. The other drug is 4 weeks/2 weeks.) We will get the refills on the Nexavar by calling the specialty pharmacy.
The next appointment with Dr. Wang is on August 15th at 2:45 but she will need to have a blood test done 2-3 days prior to the appointment. The blood test will check liver and kidney functions.
Friday, July 20, 2007
Tuesday, July 3, 2007
Starting the drugs soon
OK, we decided to go to a regular blog format so just keep checking the latest entries with the menu bar at right. Comment if you have questions.
Mom was originally prescribed Sutent by the doctor, but after talking with Mark Lynch and then talking to the doctor again, she will be taking Nexavar instead. After going through all of the red tape, she should be able to start taking it Tuesday (July 3rd) or Wednesday (July 4th). We’re hoping for few side effects, if any. It will be 4 weeks on and 2 weeks off.
Roni and Mary will be in town from the 5th of July until the 12th.
Note: Shout out to Mark Lynch for being such a valuable resource in this process. He has given us great advice and clinical studies but also told us to make the oncologist give us a rationale for treatment options. All our doctors have been great but not always eager to give us the hard truths of what we are facing. Mark has been our inside source and we really appreciate all his efforts and time.
Mom was originally prescribed Sutent by the doctor, but after talking with Mark Lynch and then talking to the doctor again, she will be taking Nexavar instead. After going through all of the red tape, she should be able to start taking it Tuesday (July 3rd) or Wednesday (July 4th). We’re hoping for few side effects, if any. It will be 4 weeks on and 2 weeks off.
Roni and Mary will be in town from the 5th of July until the 12th.
Note: Shout out to Mark Lynch for being such a valuable resource in this process. He has given us great advice and clinical studies but also told us to make the oncologist give us a rationale for treatment options. All our doctors have been great but not always eager to give us the hard truths of what we are facing. Mark has been our inside source and we really appreciate all his efforts and time.
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